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When multiple myeloma (MM) returns or you need to consider your next treatment

Knowing and communicating your priorities could help you work with your healthcare team to find a care plan that best suits your MM needs.¹

Welcome to a new way of caring for your future and staying positive…

…when your multiple myeloma returns,…

…or you need to consider your next treatment.

You’ll find a simple, guided 3-step programme…

...to help you live your life in a way that prioritises…

…what is most important to you.

Knowing what your priorities are…

…could help your wellbeing and motivation to follow your goals.

Step 1 will give you practical tools to help you narrow down your priorities.

This is the first step towards finding a care plan…

…that will help you live well with multiple myeloma.

Step 2 will help you to communicate your priorities…

…clearly with your loved ones and healthcare team.

This way, they’ll understand how to support you…

…in your daily life and find a care plan to suit you.

Then you can take Step 3…

…to focus on living well with MM.

We know it may be tricky to pick just a few top priorities,

…so there are handy online tools to help you figure out…

…what’s most fulfilling for you.

There are also resources to help you…

…prepare for appointments with your healthcare team.

Because you’re not done doing what you love.

You’re not done being you.

Get started with the programme now.

I’m not done…

We know you’re not done with life’s pleasures or savouring special times, so we’re here to help.

This website offers a step-by-step guided programme to help you take control of your future and stay positive while living with MM. This could help you live your life on your terms to feel optimistic and motivated about what matters.

People with a clear idea of what they want from life are more likely to achieve their goals.² These could be for things like treatment, lifestyle or wellbeing.

Your healthcare team also wants to hear from you³ to know what else to take into account, aside from their medical considerations.¹ This ‘shared decision making’ will help you work together to find what’s best for you.⁴

This will help create a care plan suited to your individual priorities, values and preferences,¹ not only the factors they would usually consider,³ for example:

Spending time with family
Receiving treatment in a certain way
Continuing with your hobbies

An overview of the programme

Find what matters to you

Knowing what your priorities are could help your wellbeing and motivate you to follow your goals.² First, uncover what really matters to you. It might be enjoying special moments with loved ones. Perhaps it’s keeping hospital trips to a minimum. We’ve developed tools to help you narrow your priorities down.

Communicating effectively

Once you know what your priorities are, help your care partner(s) and healthcare team understand how to support you in your daily life. This also means working together to find a care plan that best suits your needs. Take a look at our tips for clear communication.

Wellbeing with MM

When you have communicated your priorities clearly, focus on your wellbeing. This includes your physical and mental health and connecting with others.⁷ You’ll find useful information to help you aim to live well with MM.

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You may have also heard multiple myeloma called RRMM, or relapsed refractory multiple myeloma.⁵ ‘Relapsed’ means when MM returns, and ‘refractory’ means when a treatment isn’t managing MM.⁶ Whatever you call it, and wherever you are in your journey, you can still aim to live well with RRMM.⁷

When multiple myeloma returns, or you need to consider your next treatment...

...you can stay focussed on the positive and your future…

…with a step-by-step programme…

…that starts with finding what matters to you.

Knowing and communicating your priorities could help you work with your healthcare team to find a care plan that best suits your needs.

We’ve provided tips to follow (and a simple online tool) to give you the confidence to really focus on your priorities

These could fall under family, such as, do you have responsibility for any people or pets?

Your priorities may be disease management, such as, is how much time you have to spend in hospital important to you?

Or your priorities may be lifestyle, such as, is staying social a priority for you?

Whatever they are, you’ll find guidance to help you communicate your priorities clearly to your loved one...

...and healthcare team

We’ll provide you with tools and advice...

…to help them understand how you feel...

…so they can support you in making sure your day-to-day life and care plan match what really matters to you.

Because you’re not done living well with multiple myeloma…

…today or tomorrow

Take the first step and work out what matters to you.

Working out what matters most to you has benefits beyond just thinking about what makes you happy.⁸ It could also lead to you feeling more satisfied with your situation⁸ and help you find a care plan that works for you.¹

Step 1 will help you plan out what your priorities are, so you can then share these with others.

References

Auclair D, et al. Patient Preference and Adherence. 2022:16;573–85.
Moore C. How to set and achieve life goals the right way. Available at: https://positivepsychology.com/life-worth-living-setting-life-goals/ Accessed: May 2024.
Fifer SJ, et al. BMC Cancer. 2020;20:546.
Whitney RL, et al. Cancer Medicine. 2021;10:8040–8057.
Chari A, et al. The Oncologist. 2019;24:1479–1487.
Myeloma UK. Infopack for relapsed and/or refractory myeloma patients. Available at: https://www.myeloma.org.uk/documents/infopack-for-relapsed-and-or-refractory-myeloma-patients/ Accessed: May 2024.
Shapiro YN, et al. Blood Cancer Journal. 2021;11:172 DOI: https://doi.org/10.1038/s41408-021-00560-x Accessed: May 2024.
Grant RW, et al. Ann Fam Med. 2019;17:141–9.

PP-UNP-GBR-4434. May 2024

My MM needs